The drug they’re testing is ligelizumab
Do your hives come and go? I got hives June 5th. I had them every day (except for a few days while on prednisone) since then, up until recently. The last week or so, I have almost none. I even stopped taking my antihistamines to see if they’re truly gone, and I think they are. I get a tiny one here or there. I’m baffled. They’ve literally plagued me, and now all of a sudden, they’re virtually gone. Is this normal? The only changes I can think of is the weather (it’s become super dry where I live the last few weeks), and I started taking a mega dose of vitamin D once a week. Thoughts?
*edit for those asking about the clinical trial:
It’s through my allergist’s office. He’s an approved doctor for it. Qualifications are having hives every day for over 6 months, minimum 7 hives a day, and you can never have had xolair. Also can’t be nursing or pregnant or planning to become pregnant during the trial. The drug they’re testing is ligelizumab
Christina Chandler Carter
Yep this happened to me 4 years ago when I first experienced them. Took meds for 6 months then stopped …. they were gone but …. 3 months ago they came back.
Mine come and go for weeks/months/days at a time.
Maggie Page same for me
I’m supposed to start a clinical trial for ligelizumab, but I think now I won’t qualify since they’re almost gone. I mean, not that I’m complaining, I just find it funny that when I decided to take part in this clinical trial, they stop
Sarah French mine lasted 6 years before a 9 month remission. Where are you doing this trial at?
Alejandro Gonzalez through my allergist. I haven’t started it yet though. I’m not sure I’ll qualify now.
Sarah French I’ll look up to see if I do.
Holly A Pelt
I’ve had mine every day since end of June. Only a couple of days with less. I would be elated if mine went away. I think that is normal from what I have read. Be happy they are gone. Happy for you. Good luck.
Holly A Pelt I’m definitely happy, I’m just feeling cautious because I have no idea what the next day will bring
Lori Hlopak Janicki
Mine did the same and took a hiatus then came back!
My allergist says it’s an autoimmune syndrome called CIU ( Chronic Idiopathic Urticaria) and they go dormant for months to years and can come back at any time. They usually have a 3-5 year lifespan. 😬
Mine also went away for a few months and then came back
Mine have come and gone many times in my life for varied durations with and without. Hoping you’re in remission and that it sticks!
same here. i got it out of nothing… air, evening at times, small prawns at times (giant prawns ok)… on n off
Sarah where is the Clinical test being held? I would like to try and get in on it?
Sandra Reyburn it’s through my allergist’s office. He’s an approved doctor for it. Qualifications are having hives every day for over 6 months, minimum 7 hives a day, and you can never have had xolair.
Sarah French I have never had Xolair and have had hives for over a year and have hives over my entire body many more tham 7
I hurt my back lifing something heavy. I went to the doctor and he gave me a steroid shot. It was not prednisone, i asked him
I work up today hive free. I am so happy it helped my back too! Do you all think the shot will hurt me in tje long run when it starts to wear off? Also i have osteoporosis.
Sandra Reyburn I had the hives for six years. Last year I blew out my neck really bad and was also given an injection. Soon after my hives disappeared but only to return in July. You may be on to something.
Alejandro Gonzalez One can only hope and pray! Just a little relief before the next round!
Sandra Reyburn I wonder what steroid you got?
Sarah French i got Dexamethasone sodium phosphate 1 milligram
Maybe I won’t qualify for the clinical testing now. I am waiting for the guves to return.
I am suffring hives from last 4 years continus on my full body. this month i took 20 th xolair inj. 300 mg per enj.but novartis rejected me 4 month before for clinical trial