Do your hives come and go?

The drug they’re testing is ligelizumab

Do your hives come and go? I got hives June 5th. I had them every day (except for a few days while on prednisone) since then, up until recently. The last week or so, I have almost none. I even stopped taking my antihistamines to see if they’re truly gone, and I think they are. I get a tiny one here or there. I’m baffled. They’ve literally plagued me, and now all of a sudden, they’re virtually gone. Is this normal? The only changes I can think of is the weather (it’s become super dry where I live the last few weeks), and I started taking a mega dose of vitamin D once a week. Thoughts?
*edit for those asking about the clinical trial:
It’s through my allergist’s office. He’s an approved doctor for it. Qualifications are having hives every day for over 6 months, minimum 7 hives a day, and you can never have had xolair. Also can’t be nursing or pregnant or planning to become pregnant during the trial. The drug they’re testing is ligelizumab


Christina Chandler Carter
Yep this happened to me 4 years ago when I first experienced them. Took meds for 6 months then stopped …. they were gone but …. 3 months ago they came back.

Maggie Page
Mine come and go for weeks/months/days at a time.

Lara Savinainen-Mountain
Me too.

Kelly Crane
Maggie Page same for me

Sarah French
I’m supposed to start a clinical trial for ligelizumab, but I think now I won’t qualify since they’re almost gone. I mean, not that I’m complaining, I just find it funny that when I decided to take part in this clinical trial, they stop

Alejandro Gonzalez
Sarah French mine lasted 6 years before a 9 month remission. Where are you doing this trial at?

Sarah French
Alejandro Gonzalez through my allergist. I haven’t started it yet though. I’m not sure I’ll qualify now.

Alejandro Gonzalez
Sarah French I’ll look up to see if I do.

Holly A Pelt
I’ve had mine every day since end of June. Only a couple of days with less. I would be elated if mine went away. I think that is normal from what I have read. Be happy they are gone. Happy for you. Good luck.

Sarah French
Holly A Pelt I’m definitely happy, I’m just feeling cautious because I have no idea what the next day will bring

Lori Hlopak Janicki
Mine did the same and took a hiatus then came back!

Carla Kunstel
My allergist says it’s an autoimmune syndrome called CIU ( Chronic Idiopathic Urticaria) and they go dormant for months to years and can come back at any time. They usually have a 3-5 year lifespan. 😬

Sarah Youlton
Mine also went away for a few months and then came back

Samantha Christine
Mine have come and gone many times in my life for varied durations with and without. Hoping you’re in remission and that it sticks!

Shannon Green
Same here…

Fiona Liewina
same here. i got it out of nothing… air, evening at times, small prawns at times (giant prawns ok)… on n off

Sandra Reyburn
Sarah where is the Clinical test being held? I would like to try and get in on it?

Sarah French
Sandra Reyburn it’s through my allergist’s office. He’s an approved doctor for it. Qualifications are having hives every day for over 6 months, minimum 7 hives a day, and you can never have had xolair.

Sandra Reyburn
Sarah French I have never had Xolair and have had hives for over a year and have hives over my entire body many more tham 7

Sandra Reyburn
I hurt my back lifing something heavy. I went to the doctor and he gave me a steroid shot. It was not prednisone, i asked him
I work up today hive free. I am so happy it helped my back too! Do you all think the shot will hurt me in tje long run when it starts to wear off? Also i have osteoporosis.

Alejandro Gonzalez
Sandra Reyburn I had the hives for six years. Last year I blew out my neck really bad and was also given an injection. Soon after my hives disappeared but only to return in July. You may be on to something.

Sandra Reyburn
Alejandro Gonzalez One can only hope and pray! Just a little relief before the next round!

Sarah French
Sandra Reyburn I wonder what steroid you got?

Sandra Reyburn
Sarah French i got Dexamethasone sodium phosphate 1 milligram

Sandra Reyburn
Maybe I won’t qualify for the clinical testing now. I am waiting for the guves to return.

Arvind Sadul
I am suffring hives from last 4 years continus on my full body. this month i took 20 th xolair inj. 300 mg per enj.but novartis rejected me 4 month before for clinical trial

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