You have almost every textbook symptom of hypo thyroid?
Has anyone with CIU had thyroid panels come back normal, but you have almost every textbook symptom of hypo thyroid? I know I read on a post that someone had their test come back normal, but the dr put them on thyroid meds anyway, & it put them in remission.
My dr called and said everything came back within normal limits. I’ll find out exact numbers tomorrow. I requested a referral to a rheumatologist, but my NP insisted she could do all of the same tests and that it would take forever to get in to see a specialist. My dermatologist that administers my Xolair monthly is not open or supportive of a second opinion.
Also, does anyone know if Xolair screws with your bloodwork levels?
Current meds are:
- Xolair-once monthly
- Liquid Zyrtec-2x daily
- Gabapentim-3x daily
- Omeprazole-2x daily
- Hydroxyzine-2 nightly
- Ranitidine-2x daily
- Cyproheptadine-3x daily
That is a shed load of meds…… if it’s not improving matters you probably do need a second opinion x
Julie Miller it is not helping very much at all. Thats exactly why I’m wanting a second opinion.
Chris-Naomi Clark I had a similar problem with Allegra (fexofenidine) didn’t seem to help at all
I’m happy to look over your labs to let you know if they are OPTIMAL, not just normal.
Majority of thyroid patients go undiagnosed because doctors do not test correctly and only look for in range. 🤦🏼♀️
(I personally went undiagnosed 8 years because of it)
Jillyn Allred this! And I’d get your antibodies checked, not just the functions. It might be functioning somewhat ok but the underlying problem might be present. That’s my exact case.
Jillyn Allred I’m going to call as soon as I leave work to see if she can send them to mess I’ll have the exact numbers.
Chris-Naomi Clark ok!
Bella Mason yes I consider antibodies standard testing! Based on what I’ve learned. But most doctors don’t.
Jillyn Allred here we go. Three screenshots.
Chris-Naomi Clark ok…so I only see one thyroid antibody and TSH.
No free T3, Free t4, Reverse T3 or the other thyroid antibody.
How can they say your thyroid is fine without actually testing it 🤦🏼♀️
I’m really hating doctors when it comes to thyroid care 😤
Jillyn Allredgeez. I guess it’s back to the drawing board 😞
Chris-Naomi Clark sadly, I’ve found nearly ALL doctors (even endocrinologists) year thyroid incorrectly.
Unless the patient is educated and demands certain tests, they don’t get done. And then you need to know how to read them.
Jillyn Allred I specifically asked for all thyroid panels. What type specialist do I need to see? I’m at a point I’ll just call around and see if there’s one that I don’t need a referral to. My medication list gets longer every visit and I’m just worn out from the whole process.
Current meds are:
Liquid Zyrtec-2x daily
Chris-Naomi Clark there’s a chance some tests haven’t had a chance to be run. I’d contact your doctor and ask specifically which tests they ordered.
But “full panel” means many different things to different doctors.
Functional medicine doctors are more likely to get things right. I still went through 3 before my 4th actually being a good one.
Jillyn Allred thank you. I will ask. And am going tot ru together this figured out. I’ve actually never even heard of a “functional medicine dr” until this group.
Chris-Naomi Clark it’s such a process 😔
I ended up doing LDA Therapy SNS im now medication and hive free. Thank goodness!
I could be wrong, but xolair binds with your IgE. So those might not reflect correctly. Not sure if it alters other markers
Kimberley Ann thank you. That’s what I’m wondering. If the Xolair affects the numbers or not.
That is alot of meds. Have you made diet change. No gluten, no dairy, no processed meats, no corn, lots of water and lemon water