Hive free but I have recently been diagnosed with Celiac

you haven’t been screened for celiac

I am 2.5 years hive free but I have recently been diagnosed with Celiac. I really wonder if that triggered my hives and we didn’t know it. Last year while pregnant, my high risk obgyn asked if I had celiac and I was like- no? Why do you ask? And she said because celiac and hives are connected and all 3 of her boys have hives, and all 3 have celiac. And I was thinking how this is also true for my best friend. Well it turned out to be true for me also. If you haven’t been screened for celiac… GET SCREENED!!!!

(Diagnosis – Autoimmune Urticaria and Urticaria Vasculitis). This month marks 1 year Hive and Vasculitis free. I cannot express what this means to me and my family. It’s almost like a dream… a nightmare….. There were moments at my worst where I would shake in terrible pain. Hubs rushed me to emergency in the middle of the night so many times we lost count, and he found me in the bathtub crying and screaming silently for help that I was worried would never come. It was the most trying time of our lives and my family and close friends stuck with me. I won’t tag you all but thank GOD for my best friends who were there for me through this. There were times I didn’t think I could go on frankly. Even writing that makes me insta-cry. But with faith, hope and love- and a doctor who didn’t give up on me…. we broke through. Some aren’t so lucky. Someday I’ll figure out how to help others with these diseases. Never give up!!!

Discussion

Jacquelyn Brunache
Did you have allergy testing done?

Kristen Soderberg
Jacquelyn Brunache no luckily my biopsy and bloodwork came back positive for autoimmune before they could make me go through all that.

Jacquelyn Brunache
I think I’d rather have allergy testing than a biopsy. I just asked because I tested mostly negative for all of the allergens but my hives are still here. I actually did a lot of them when I’m pregnant and know that hormones greatly influence them

Kristen Soderberg
Jacquelyn Brunache eh it was a quick punch biopsy and at least it told us I have Urticaria Vasculitis

Jennifer Trimble Van Haitsma
I’m celiac with hives. Now that I’m 100% gluten free (and have been for over 5 years) my hives are way better. I rarely get them anymore, but still randomly will have a handful, or get pressure hives from something.

Cara Koonce McDaniel
Did you have a blood test for celiac or an endoscopy?

Kristen Soderberg
Cara Koonce McDaniel both

Cara Koonce McDaniel
Kristen Soderberg Was the blood test negative or inconclusive, leading you to have the endoscopy? I have only had the blood test which was negative.

Kristen Soderberg
Cara Koonce McDaniel mine was borderline positive

Cara Koonce McDaniel
Ok thank you.

Jeanne Zamora
My daughter’s is like that but only hers is all over her body….

Kristen Soderberg
Jeanne Zamora mine was also all over my body