I thought I was done with hives since it’s been about 15 years since I had them daily for 7 years. However, they thought differently and decided to come back (on Oct 1, which I read is national hive awareness day or something, go figure) Back then there was no support group, I’m glad there is today.
I did nothing out of the ordinary. I was sitting in a training class at work and could literally feel my eye swelling. Then a couple days later, at a work volunteer event, I was painting walls of a youth center and deep hives popped out on my hands from where I was hold the paint roller. And now it’s a free for all. Pressure definitely triggers them, but it seems that once I have a few from pressure, they pop out everywhere.
Ann Betker Widmar I am trying the vit d and probiotic s for my daughter. Fall was bad.
JohnsCindi Fagan How much D?
Ann Betker Widmar Study done had them on 4000 iu a day. Sone results. As I keep reading it really is trial and error for each person and things constantly change. I remember when we coyldnt get her off zrtec for sone tests witjout swelling. Then all meds made her sick.
JohnsCindi Fagan Ann, I am in the process of trying to wean my DD from Claritin. Her liver enzymes are elevated. I am so afraid she will hive because of it. She also is on Zyrtec and Zantac Can you share anymore about getting off meds?
JohnsCindi Fagan Thanks for the D info.
Ann Betker Widmar JohnsCindi Fagan My daughter was on 4 Zyrtec, 2 zantac, 2 benedryl, flonase, after steroids did nothing when we first tried to get her off for a balance test, she kept blowing up. Once they did a stomach biopsy, because she was coughing and vomiting uncontrollably it was found she had ulcers on stomach and lactose intolerant. Once we removed dairy (and I notice with tomato sauces too) she continued to have trouble and started blacking out. At that time the said there should be no side effects and i stopped that day cold turkey with her. That time her body handled all.still facial swells daily for years but then this September has been horrendous and we started again from beginning to see if steroids work with cyproheptadine,Singulair, and Symicortâ.after 3 ER visitsbenedryl and steroids did nothing thru an IV.so again took her off cold turkey.
Ann Betker Widmar My husband heart doc said only place to be is Mayo or Cleveland Clinic in US but after being on this site, besides Xolair, we have tried most all…..we have patch testing this week to stay away fro triggers. Is going to be a long week. I need start drinking coffee now 🙂 We use humor because otherwise we would cry more then we do during crisis times. We also follow Steve Gleason and No white flags for emotional support, although his is ALS, he is very inspirational.
JohnsCindi Fagan Ann, stomach ulcers are because of HPylori-which for some once cleared-the hives go away. Was she treated for HPylori?
Cheri Laurenza Rossi No, I did nothing out of the ordinary. I was sitting in a training class at work and could literally feel my eye swelling. Then a couple days later, at a work volunteer event, I was painting walls of a youth center and deep hives popped out on my hands from where I was hold the paint roller. And now it’s a free for all. Pressure definitely triggers them, but it seems that once I have a few from pressure, they pop out everywhere.
El Fraser Awww. I’ve had horrible MCAS/CIU for 6 years, although I now know I have had a mast cell disorder all along. Search my name in here and find my posts regarding the help I am getting from a Tens unit. 7 weeks in now and I am able to relieve various patches of hives. I am nearly 70 and cannot take chemo drugs (I tried cyclosporine and week 2 was too ill to continue taking it) – and refuse some of the other highly speculative and terribly costly drugs (too risky in my estimation). Bad enough I must continue the cocktail of antihistamines permanently. Sending you a hug.
Maggie Maye I am so sorry they came back..((hugs))
Cheri Laurenza Rossi Thank you