What to do more to help my body to heal and not loose hope?

Today i had Xolair shots in the morning, acupuncture treatment at lunch time, mediyoga class in the afternoon this is how the evening ends up 🙁 I have been doing this combo of Western medicine, Chinese and Oriental practices for 10 month now but no relief. I eat low histamine diet, only natural and ecological food. What to do more to help my body to heal and not loose hope?


Discussion


Yvonne Visée Clohessy You might want to ask your dr about immusuppressants. Xolair didn’t work for me and I’ve been hive free on cyclosporine. Some of the other are methotextrate, celcept and tacrolimus. Monthly blood tests are needed, but I got relief this way. Good luck.

Carol Mark Rollo Hi Yvonne, are there immunosuppressants in tablet form? I’m due back at my Dermotologist next month and I know that immune system suppressants are the next step

Yvonne Visée Clohessy Carol, I’ve done cellcept and cyclo and yes, they are both in tablet form.

Carol Mark Rollo Glad you’re doing well, some days are so desperate with this condition

Yvonne Visée Clohessy Carol, when I 1st started I was on a week of prednisone to get the hives under control along with the highest does of cyclo for my weight. Once I was done with pred, the hives have stayed away. I’ve dosed down from 250mg a day (125 in am and 125 in pm) to 50mg a day. I stayed on the high dose for a month just to put my mind at ease that it was working. And then have slowly dosed down, I’m also on Zyrtec, singulair and doxepin.

Carol Mark Rollo Yvonne I love the prednisolone, the only thing that works

Ray McCreary Yvonne Visée Clohessy I have been taking singulair for about a week now without any results. What is your take on singulair? How long did it take to see improvement with it? Thanks

Yvonne Visée Clohessy Carol, prednisone is the only thing that worked for me as well, that’s why I was switched to cyclosporine, the lessor of 2 evils. Ray ,I’ve always taken it one of my cocktail of drugs. When I’m off pred and cyclo, the zyrtec and singulair and doxepin don’t do much for me, but I’m still on that with the Cyclo

Ray McCreary I guess I try give it at least a month to see an improvement. I’m in the process of being approved for xolair. I hope to give it a try. Good to hear your medicine is working well. Thank you

Yvonne Visée Clohessy Ray, hope xolair works for you, it’s been a lifesaver for so many, but remember if it doesn’t there are other options.

Ray McCreary Thank you Yvonne Visée Clohessy. You have very helpful and nice too me since the first day I joined the group. I don’t have anyone at home to help me with information because they just don’t understand this condition. I appreciate all the help you have given me and for answering my questions.

Stephanie Bradshaw I’m the same took 1 shot of Xolair didn’t get relief especially at night. Doctors have me back on cyclosporine and by week 3. Hives clears mostly and I also take 6-7 AH a day. Pred kills me when it falls out of my blood so I don’t take it anymore. Try to relax, calm down, meditate. I try to eat healthy most because it is good for the body and drink lots. Acupuncture made it worse as the sites started to hive up. Was painful and it bled where the needle went in. I only tried it once as was desperate. Hope u find a solution and or relief soon.

Vicky Goddard I’m sorry . Feel better

Rhoda Young I feel for you. Got hives, itching & burning but much better than I was. I’m on Xolair plus a cocktail of antihistamines.

Jon Bunner I been on and off Xolair a few times due to working away from home. From my experience it takes a couple days to kick in so if you just got it today it is prob not in system yet.

Andy Hutchinson Maybe ask your doctor about plaquenil? It took 10 months to kick in on me but I’ve been 4wks with minimal hives – just life-changing!!

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